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Melissa and Damien's My Health Record story

Melissa and her husband Damien have seen hundreds of healthcare providers since he lost his sight at the age of 26. Using My Health Record means Melissa doesn’t need to remember all the details of Damien's health history and medications when helping with his care.

What is My Health Record? 

My Health Record is an online summary of a person's key health information. It will provide greater support for Australian carers and those they care for.

Carers are an integral part of Australia's health system. Almost 2.7 million Australians care for someone with a disability, a medical condition, mental illness or someone who is frail and elderly.

With permission, My Health Record makes it easier for carers to track the health information of those they care for, providing access to test results, diagnostic reports and details of prescribed medicines. A digital record will make it easier to move between healthcare providers without having to repeat all the details of the person's medical history on every visit.

My Health Record better supports and empowers the caring community by providing:

  • Control over services – You can access test results, diagnostic reports and details of prescribed medicines, and even upload extra health notes and emergency contacts. With My Health Record, you have a system for knowing where everything is.
  • Connected care – Health details are available in one place and can be accessed by doctors, specialists and hospital staff. It means healthcare providers have a more complete picture to inform clinical decisions.
  • Emergency information – In a medical emergency, doctors can view information including allergies and current medications. This will mean safer and better healthcare for those with special care needs.
  • Portable healthcare – With My Health Record, details are digitally recorded, making it easier share information with multiple providers.
  • Preparing for the future – My Health Record allows you to provide a copy of advance care plans as well as organ and tissue donation decisions, so the wishes of the person you care for are always clear.

Managing a My Health Record

If you are a carer for someone, you can be listed as that person’s nominated representative. This means you can view and manage their My Health Record on their behalf.

My Health Record is secure and protected by law. As a nominated representative you can help the person you care for decide what is included in their record and who is able to access it.

You can also apply to become an authorised representative. This means that you can manage a My Health Record on someone’s behalf if they cannot manage their own record.

Case study: My Health Record supports Angela’s long-term care needs

John and Margaret are both primary carers for their daughter Angela, who has Down syndrome. While it can be challenging for them to manage Angela’s health needs with their own as they get older, it’s been made easier with My Health Record. When Angela recently had to see a new specialist, John didn’t have to worry about bringing paper copies of her previous test results, or repeating her medical history, because the doctor could bring her details up online. It’s a huge weight off John and Margaret’s shoulders to know there’s a digital system to support them and their daughter.

Opt in or opt out of My Health Record at any time in your life. It’s your choice.

A My Health Record will be created for every Australian who wants one after 31 January 2019. After then, you can permanently delete your record at any time. If you change your mind, you can also re-register for one in the future.

If you don’t want a record created for you after 31 January 2019, you can opt out online.


“It was really important for Marnie to have a My Health Record, but it was also important for me, as her carer. It provides me with a level of security and confidence knowing that, if I wasn’t here, someone will know about Marnie’s story and that she will be managed appropriately.”

Donna Sedgman, mother and primary carer for 20 year-old Marnie Clapham

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